The website for PMR-GCA NE can be found at www.pmr-gca-northeast.org.uk
The forums within the NE site are here - pmrandgca.forumup.co.uk
Other useful sites:
A thread for users to put a precis of their story.
I was diagnosed with PMR 5 years ago and have been taking predisilone (steroid) since then. I have managed to get down to 8mg per day but have found it almost impossible ....
My 83 yr mum diagnosed early 2013 with Polymyalgia. Responded to initial pred dose of 40mg dropped to 30mg after a week and gradually reduced to 20mg Then 8 weeks ....
I am new to this site and find reading other patients' reports both comforing and helpful.
I have had PMR for ten years but was not diagnosed early. A Rheumatologist ....
Just a quick question to all of you fellow PMR/GCA sufferers out there - has anyone suffered with pain in the soles of the feet (the ball area). Have been suffering ....
I've added my story in the brief history , had all the symptoms five weeks ago and blood tests three weeks ago ...my esr was 84 not that I knew what an esr was or ....
off to see the doctor again this coming monday. I seen a health nurse yesterday and she said I am allergic to the lyrica the rhuematologist put me on. I am itchy ....
Have not posted anything for a long time but that does not mean I am not still one of the happy band of supporters . I have been reducing the pred doses ....
What are the implications of not taking steroids? I have had PMR for 6 months and have just been
prescribed the usual ...prednisolone by my Rheumatologist. I ....
after blood tests my Doctor says I have P.M.R.He has given me Prednisolone for 12 days. Starting with 30mg aday down to 5mg for the last 2 days. I work 12 hour shifts ....
I am relatively young to have this was 58 when diagnosed and have had polymyalga for one and half years. Have had quite a few ups and downs but prenisolone gave ....
I am 58 and have had pmr since last September. I am a teacher nearing retirement. This year has
been diffficult because of the PMR. My question is whether to take ....
I am 67 years old and several months ago was diagnosed with polymyalgia. Started on 15 mg but had bad side effects with physical anxiety like pounding heart, shaking ....
I have had PMR for about 18 months and have been off of steroids for about 4 months now, but the pains are beginning to return. Is there any foods or supplements ....
I've experienced fatique, loss of appetite, and elevated temperature for a few months. My blood work shows anemia,elevated sed rate and proteins. I was diagnosed ....
Hello all, I am new here. I am really struggling at the moment with painful symptoms and am getting absolutely nowhere with my GP. I suspect I have some sort of ....
Hello all. I wonder if some of you would be kind enough to assist me...in getting out of the hole I have dug for myself. I am a 57 year old male. Diagnosed with ....
Hi my name is Sandra and I have just been diagnosed with Polymyalgia
Rhuematica,I had been unwell for about 5 weeks untill I was unable to even walk dress myself ....
i would like to know if anyone that has PMR also been diagnosed with FIBROMYALGIA, i was diagnosed with fibromyalgia in october 2012.
What a relief to see I'm not the only one with PMR! Symptoms suddenly started last June, Dr seems quite certain of diagnosis, am going to see specialist end Feb. ....
Hi everyone, back again with another querie. I have been to see my rheumatologist today and because my pmr symptoms are not getting any better on 15mg a day (feeling ....
I'm from the USA and there are nosuch forums here. I have pmr and am now on 1.5 mg daily and take 0.5 mg at night ....
Has anyone out there experienced muscle aches after taking Alendronic Acid?
Hi all. I have been a member of this forum since 2011 when I was first diagnosed with PMR. I have not posted for a while as basically I just quietly carried on with ....
I am from Australia, and I am in the 23rd month of my PMR. I am now 60 years old. This forum has been more help and reassurance to me than any other site ....
First, please foregive me my clumsy language, I am from Norway
Had the pain and stiffness since medial november 2012, diagnosed myself in december, normal blood ....
My Dad who is 72 has been diagnosed with PMR just before Christmas and was put on 20mg of steroids. Before this he had been in so much pain for about 3 months, ....
I recently read that some people with pmr can suffer from carpel tunnel syndrome. I have recently been experiencing shooting pains from my thumb up to my elbow and ....
I was shocked to be diagnosed with PMR as I am just 39 and I understood that this generally affected older people. so firstly, I would be keen to know if others ....
I asked my Doctor for a DEXA scan and as I seemed to tick all the boxes she sent the necessary forms off for me. When the letter arrived to arrange the appointment ....
Hello Everyone out there with the dreaded PMR. I have been back to see my GP today after taking 4mgs of pred for 3 months and now having to increase again. Can't ....
You know how we are so often assured that PMR burns itself out in a couple of years? After reading Pandemonium's post I went off to do my usual searching ....
Had a rheumy appointment this morning, and saw the top man himself who still doesn't accept after 2 years that what I have is PMR. He still insists that I'm too ....
I have had pmr for nearly three years now, after two years my consultant was keen for me to reduce the steroids altogether. She quoted inflammatory markers - crp ....
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