Still Surviving

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I thought you may like to hear an update regarding my husband,Neville who was originally only offered palliative care this time last year.

Eleven months on from the operation to remove the bile ducts he is back to his normal weight, looks really healthy and is enjoying life. He still has to do his 5 years cancer free but things are looking good for him. He visits Birmingham every six months now for check ups, and a recent blood test showed that there are no tumour markers present.

To all of you out there suffering this dreadful disease please be positive. Neville has been extremely lucky, if we hadn't pushed for an operation he would have been dead now.

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3 Replies

  • Posted

    I thought that I would give you another update on Neville who was diagnosed and operated on two years ago.

    He has just been back to Birmingham for his six monthlu check up and everything is still looking good. At twelve stone he is heavier than he's ever been, half as heavy again as immediately post op.

    He's not out of the woods yet, and still has to do the five years cancer free, but things are looking much better than the original diagnoses of six months!!

    We take each day as it comes, and try to enjoy time with the family as much as possible. Life is looking good, and this terrible cancer has taught us to count our blessings and never to take tomorrow for granted. If it hadn't been for the skill of the surgeons Neville would have died 18 months ago, terrible to think of, but true.

    I think JC had something to do with his miraculous recovery as well, so many people offered prayers for his return to good health, and I just know that those prayers were answered.

    Maureen

  • Posted

    hi my name is ann my mum is dawn she is 68 ans suffering from bile duct cancer been sent home from hospital now told there is nothing more they can do 4 her can u advise me on other things we can do the doctors have just sent my mum home to die annxx
  • Posted

    I'm having the same experience as you on this...my dad is 53. He was sent home from hospital in may after they said there's nothing more they could do for him. Which we just accepted because at this point we were so exhausted with the lack of treatment he was getting and all the waiting and waiting and nothing getting done...and THEN they tell us it's spread and there's nothing they could do. I still don't get it and it makes me so so angry.

    I don't know what our rights are or if there's other treatments...if anyone else knows? Though my dad has explicitly expressed his wish to never go back to hospital. No matter what. He's just got no faith left in them they did NOTHING for him from day one. Nothing. But I don't know...he's got better since coming home...he's settled and more content. I don't know how long he's got. But I'd rather have him around in my future...

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